Severe Chronic Fatigue Syndrome Pictures
Photos Of My Room
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The severe Chronic Fatigue Syndrome pictures below show how my room was
arranged to maximise my independence and chances of survival.
Over fourteen years I had three different rooms as I moved twice. Once I was evicted. I couldn't physically move out when asked to do so, so the landlord started proceedings. Luckily that galvanised friends and family to find me somewhere!
Next to my bed you can see a tank of water to wash my hands.
There are also flasks of hot water and snacks.
Washing my hands or feeding myself anything were activities that needed to be paced out.
needed everything to be within reach for the times when a carer was
late or didn't show up. When that happened, I had to try to contact the
care agency office or a neighbour for help. I could not speak on the
phone or get in the wheelchair without the symptoms worsening, so it had
a serious effect on my health when a carer was late, and they were
I had reactive hypoglycemia so the symptoms got worse if I did not eat something every 2 or 3 hours.
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I had a commode by my bed.
restricted in how much I could drink, as it was a very significant
movement for me to reach the commode.
in this room, the wheelchair could not be placed nearer the bed. This
meant I could get in it even less easily and often than otherwise.
The Multiple Chemical Sensitivities were such that I had two chemical filters on permanently.
You can see one here on the wall.
reacted to the everyday perfumed products that the carers used, such as
shampoo and deoderant. It would cause my muscles to go into a kind of
paralysis and my brain to have difficulty in sending messages to
instruct my body to move.
If the chemicals in the products were
strong for me, it was hard for me to open and close my mouth to be fed.
It was a constant battle to get and keep carers who wore products that
allowed me to be able to eat.
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